By the time the holidays rolled around I was highly suspicious that I still had active Cushings. My symptoms were not resolving or showing any progress in that direction. I had a phone appointment with Dr Friedman mid-January and he recommending I re-test. It was so disappointing and frustrating to think about not only having gone through the surgery and recovery, but testing again. Testing is a long process for cyclic Cushies. I tested for 3 weeks and that was long enough to see my body was making too much cortisol still. The post-op MRI that I did in December showed a 'suspicious' area. It is important when having a pituitary MRI to have the dynamic protocol, this is done by having the contrast injected through IV while the scan is being done. If there is a tumor the contrast will not 'fill' the gland symmetrically.
I contacted my neurosurgeon and scheduled my second pituitary surgery for March 8, 2012.
bittersweet.
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